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Student Number 941204014
Author Yen-ling Kuo(郭彥伶)
Author's Email Address kuoyenling0804@gmail.com
Statistics This thesis had been viewed 1589 times. Download 743 times.
Department Graduate Institute of Philosophy
Year 2008
Semester 2
Degree Master
Type of Document Master's Thesis
Language zh-TW.Big5 Chinese
Title 隱私權與基因隱私權之倫理分析:個人主義與儒家之比較
Date of Defense 2009-06-29
Page Count 56
Keyword
  • Confucianism
  • ethical relational autonomy
  • family autonomy
  • genetic privacy
  • right to privacy
  • Abstract In the modern world, to lead an independent life with individual freedom and personal autonomy is forever more important. Right to privacy is what the individual could use for the protection from infringements of the third party. Recent years, as a result of the development of life science and genetic medical research, there come a number of new privacy issues. Among them, genetic privacy is one of the most important issues. The main reason is that genetic information concerns not only the individual, but also family members and ethnic groups. The employment of genetic technologies affects not only the present ones but also our future generation. Therefore, the western individualistic idea of right to privacy is bound to be challenged. Different from the west, Chinese community has been strongly affected by Confucianism, and the right to privacy is not completely individualistically oriented, but comes closer to the model of concentric circles. This thesis attempts to construct a new foundation for privacy in terms of the Confucian conception of family autonomy or ethical relational autonomy and applies it to the solution of issues of genetic privacy. It is precisely because genes bring family members into a special kind of linkage and intimacy, Confucianism regards family solidarity more aptly expresses the true value of human life. I conclude that with family as the basic unit for genetic privacy and family members sharing the responsibilities and risk of genetic medical therapy and research is more reasonable than on an individualistic conception.
    Table of Content 第一章導論……………………………………………………1
    第一節 研究動機與目的………………………………………2
    第二節 隱私和隱私權之爭議…………………………………4
    第三節 論文章節架構…………………………………………7
    第二章隱私與隱私權…………………………………………9
    第一節隱私權及其理據………………………………………10
    第二節隱私權的內容…………………………………………12
    第三節隱私權的理論證成……………………………………16
    第四節隱私權之困境與其限度………………………………18
    第三章基因隱私權:個人主義進路與反省………………21
    第一節隱私權之下談論基因隱私的理由……………………22
    第二節談論基因隱私權遭遇的困難…………………………24
    第三節西方論述對家庭關係與基因隱私權的反省…………27
    第四節基因隱私權對家庭帶來的挑戰………………………30
    第四章儒家進路下之基因隱私權…………………………33
    第一節非個人主義式的隱私權基礎…………………………33
    第二節儒家基因隱私權之家族性考量………………………37
    第三節家族性隱私權與基因隱私權於生物資料庫之考量…39
    第四節其他領域之反省與應用………………………………41
    總結…………………………………………………………………44
    參考書目……………………………………………………………46
    Reference (一)中文書目
    1.李瑞全著,《儒家生命倫理學》,(台北:鵝湖出版社,2000年)。
    2.李瑞全著,《當代新儒學之哲學開拓》,(台北:文津出版社,1993 年)。
    3.李瑞全、蔡篤堅主編,《基因治療與倫理、法律、社會意涵論文選輯》,(台北:唐山出版社,2003年6月)。
    4.牟宗三譯,《康德的道德哲學》,(台北:學生書局,1982年)。
    5.林子儀、蔡明誠主編,《基因技術挑戰與法律回應》,(台北:學林出版,2003年5月)。
    6.范瑞平譯,《生命倫理學的基礎》(長沙:湖南科學技術出版社,1996年)。
    7.劉宏恩著,《基因科技倫理與法律-生物醫學研究的自律、他律與國家規範》,(台北:五南書局,2009年)。
    (二)中文期刊論文
    1.李瑞全,〈倫理諮詢理論與模式〉,收錄於生命倫理研習會暨醫療倫理聯合討論會會議論文集,(花蓮:2007年),頁4-23。
    2.李瑞全,〈生命倫理學五十年(下)〉,《鵝湖》第28 卷第7 期(總號第331),(台北:鵝湖月刊社,2003 年1 月),頁15-24。
    3.李瑞全,〈從儒家視域看人類基因圖組研究計劃〉,《應用倫理研究通訊》第6期,(中壢:國立中央大學哲學研究所,1998 年4 月),頁31-34。
    4.李瑞全,〈人類基因、優生學與基因福利觀〉,《瞭望公元2000年焦點研究:人文價值組》,(台北:國家展望文教基金會,2000年),頁165-117。
    5.李瑞全,〈儒家生命倫理學之取向:不忍人之心與自律原則〉,發表於國立中央大學哲學研究所、鵝湖雜誌社、東方人文學術研究基金會主辦「第六屆當代新儒學國際學術會議」,2001年11月10-13日。
    6.李瑞全,〈生物資料庫之諮詢同意倫理分析〉,《台灣生醫倫理與社會福利學刊》創刊號,(台北:財團法人醫界聯盟基金會、社團法人台灣社會改造協會、記憶工程股份有限公司,2007年9月)。
    7.李崇僖,〈從生物資訊學到基因資料庫之規範課題〉,《生物科技與法律研究通訊》,(台北:台灣大學生物醫學法律研究室,2005年7月)。
    8.李崇僖,〈人體基因研究之倫理規範問題初探〉,《月旦法學雜誌》第一四一期,(台北:元照出版社,2007年2月)。
    9.李崇僖,〈從公共健康觀點論醫療資訊隱私保護原則:以美國HIPAA隱私規則為中心〉,《台灣生醫倫理與社會福利學刊》創刊號,(台北:財團法人醫界聯盟基金會、社團法人台灣社會改造協會、記憶工程股份有限公司,2007年9月)。
    10.洪蘭,〈二十一世紀基因工程之啟思〉,《應用倫理研究通訊》第6期(中壢市:國立中央大學哲學研究所,1998年4月)。
    11.高柏園,〈生命科學對儒家倫理學的衝擊〉,《生命倫理學國際會議文獻》(中壢市:國立中央大學哲學研究所,1998年6月)。
    12.劉宏恩,〈冰島設立全民醫療及基因資料庫之法律政策評析──論其經驗及爭議對我國之啟示〉,《台北大學法學論叢》第54期,(台北:台北大學法律學院,2004年9月)。
    13.顏厥安,〈生物科技之倫理、法律與社會意涵問題簡介〉,《生物科技與法律研究通訊》第2期,(台北:台灣大學生物醫學法律研究室,1999年4月)。
    (三)英文書目
    1.Beauchamp Tom L. & Childress, James F., Principles of Biomedical Ethics (Oxford: Oxford University Press, 2001, fifth edition).
    2.Buchanan Allen (Eds.), From Chance to Choice: Genetic and Justice,(NY: Cambridge University Press, 2000).
    3.DeCew Judith Wagner, In Pursuit of Privacy: Law, Ethics, and the Rise of Technology, (Ithaca& London:Cornell University Press, 1997).
    4.D. S., Davis, Genetic Dilemmas – Productive Technology, Parental Choices, and Children’s Futures, (NY: Routledge, 2001).
    5.Etzioni Amitai, The Limits of Privacy, (USA:Basic Books,1999).
    6.Hansson Mats G., The Private Sphere: An Emotional Territory and Its Agent, (UK:Springer, 2008).
    7.H. T., Jr., Engelhardt, The Foundations of Bioethics, 2nd edition,(NY: Oxford University Press, 1996).
    8.Inness Julie C., Privacy, Intimacy, and Isolation,((NY: Oxford University Press, 1992).
    9.Laurie Graeme, Genetic Privacy:A Challenge to Medico-Legal Norms,(Cambridge: Cambridge University Press, 2002).
    10.Liu Shu-hsien, Understanding Confucian Philosophy: Classical and Sung-Ming,(Praeger Paperback,1998).
    11.Nelson Hilde Lindemann& Nelson James Lindemann, The Patient in the Family: An Ethics of Medicine and Families, (NY& London:Routledge, 1995).
    12.O’Neill Onora, Autonomy and Trust in Bioethics, (Cambridge: Cambridge University Press, 2002).
    13.O’Neill Onora, Rethinking Informed Consent Bioethics, (Cambridge: Cambridge University Press, 2007).
    14.Schoeman Ferdinand D. ed., Philosophical Dimensions of Privacy: An Anthology, (Cambridge: Cambridge University Press, 1984).
    15.Waldron Jeremy, Theories of Rights,((NY: Oxford University Press, 1995), seventh impression.
    16.Warren S.D. & Brandeis L.D., 4 Harvard Law Review ‘The right to privacy’, (1890).
    (四) 英文論文
    1.Allen Anita L., ’Genetic Privacy: Emerging Concepts and Values’, Mark A. Rothstein ed., Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era,(CT: Yale University Press,1997), pp.31-59.
    2.Annas George J. & Glantz Leonard H. & Roche Patricia A., ‘Drafting the Genetic Privacy Act:Science, Policy, and Practical Consideration ’, Journal of Law, Medicine and Ethics 23, (1995), pp.360-365.
    3.Fan Ruiping, ‘Self- Determination vs. Family-Determination: Two Incommensurable Principles of Autonomy’,刊於Bioethics, vol.11, Numbers 3&4 (1997), pp.309-322.
    4.Juengst Eric T., ’Genetic Information, Ethics, Family Issues’, Thomas H. Murray& Maxwell J. Mehlman ed., Encyclopedia of Ethical, Legal, Policy Issues in Biotechnology volume1,(Canada:John Wiley & Sons,Inc., 2000),pp. 390-396.
    5.Lee Shui Chuen, 'On Relational Autonomy:From Feminist Critique to Confucian Model for Clinical Practice', Lee Shui Chuen ed., The Family, Medical Decision-Making, and Biotechnology, (Dordrecht:Springer, 2007), Chapter 7, pp.81-93。
    6.Lee Shui Chuen,’ On Relational Autonomy: From Feminist Critique to Confucian Model for Clinical Practice,’ presented on Jan. 5-7 at the International Conference of Bioethics, Beijing.
    7.Malanda Sergio Romeo, ‘Confidentiality and Genetic Data:Ethical and Legal Rights and Duties. A European Perspective’ abstract, Eighth Asian Bioethics Conference Abstract Book(Bangkok:2007), p. 23.
    8.Naser Curtis & Alpert Sheri, ‘Genetic Information, Ethics, Ethical Issues in Tissue Banking and Human Subject Research in Stored Tissues’ , Thomas H. Murray& Maxwell J. Mehlman ed., Encyclopedia of Ethical, Legal, Policy Issues in Biotechnology volume1,(Canada:John Wiley & Sons,Inc., 2000),pp. 363-389.
    9.Powers Madison, ’Genetic Information, Ethics, Privacy and Confidentiality:Overview’, Thomas H. Murray& Maxwell J. Mehlman ed., Encyclopedia of Ethical, Legal, Policy Issues in Biotechnology volume1,(Canada:John Wiley & Sons,Inc.,2000), pp. 406-413.
    Advisor
  • Shui-chuen Lee(李瑞全)
  • Files
  • 941204014.pdf
  • approve immediately
    Date of Submission 2009-07-14

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